Can’t sugar coat it

Apparently Julie was walking today and eating and doing better. Then she got a fever and is now back in the etc. She is running a temperature of 101 and it is reminiscent of last year when she would get a fever and then be hospitalized. Crazy how far she has come and yet we are still playing the same games. They are saying they just want to hold her for a few days again to monitor her, so lets see how that plays out. Otherwise she was supposed to be on the 3 times a day home nurse visit for infusions. Hopefully this will just be a hiccup again and we can get back on track again.

Your email address will not be published. Required fields are marked *